Congenitalhikids.org
4500 E. palm Valley Blvd ste108/ box# 21
Round Rock , TX 78665
contact





Helpful Websites:
Cook Children's Medical Center ( HI center for Texas)
https://www.cookchildrens.org/SpecialtyServices/Endocrinology/Services/Pages/Hyperinsulinism.aspx
Children's Hospital of Philadelphia (HI center for Philly)
http://www.chop.edu/service/congenital-hyperinsulinism-center/home.html?id=47690
Live stream account
http://www.livestream.com/hyperinsulinism
National Organization for Rare Disorders
(Our Organization is now listed on their website)
http://www.rarediseases.org/search/orgdetail_full.html?org_name=Congenitalhikids.org
Familial Hyperinsulinism (FHI)
http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene?=hi
Ronald McDonald Houses:
Ronald McDonald House of Fort Worth
Ronald McDonald House Charities of Austin and Central Texas
Philadelphia Ronald McDonald House
Athena:
Athena Diagnostics - Find Test
http://www.athenadiagnostics.com/content/test-catalog/
Congenital Hyperinsulinism - Athena Diagnostics
http://www.athenadiagnostics.com/content/diagnostic-ed/endocrinology/hyperinsulinism
Disease reviews (Athena)
http://www.athenadiagnostics.com/servlet/DownloadServlet?id=306
Social Security:
How to Apply for Social Security Benefits
http://usgovinfo.about.com/library/howto/htsocsec1.htm
Social Security Online - The Official Website of the U.S. Social Security Administration
School Plan:
Documents: the 504 Plan
http://specialneedseducation.suite101.com/article.cfm/504plan
Research & Articles:
Child Development:
Children's Special Needs Network
http://www.special-children.org/links.htm
Developmental Delays
http://learningdisabilities.about.com/od/glossar1/g/develdelay.htm
Developmental disability, early intervention, developmental delays
Speech and Language:
Speech and Language Developmental Milestones [NIDCD Health Information]
http://www.nidcd.nih.gov/health/voice/speechandlanguage.asp
Speech and Language Milestones for Babies and Children
http://www.childrensdisabilities.info/speech/language-milestones.htm
Free speech therapy tips for children with speech, language delay
How to Teach a Child With Speech Delay
http://www.ehow.com/how_2069849_teach-child-speech-delay.html
Family-friendly supports for communicating with picture symbols and pecs
http://www.givinggreetings.com/
Diabetes:
Mark & Patti Clifford
1 Disease! World! Voice! , working daily to promote diabetic and diabetes awareness throughout the world through personal interaction with everyone.
https://1diseaseworldvoice.org
Children with DIABETES Online Community
http://www.childrenwithdiabetes.com/
Bloodindex - Blood sugar converter
http://www.bloodindex.net/Blood_Sugar_Converter.php
Diabetes at School - For Parents & Kids - American Diabetes Association
http://www.diabetes.org/for-parents-and-kids/living-with-diabetes/diabetes-school.jsp
Children with DIABETES - Information for Teachers
http://www.childrenwithdiabetes.com/d_0q_200.htm
Carbs & Diabetic Menu:
Low-Carb Diet - Kids and Low-Carb Foods
http://pediatrics.about.com/od/obesity/a/708_lowcarbdiet.htm
High-Fiber Low-Carb Food List - Fiber Counts in Low-Carb Foods
http://lowcarbdiets.about.com/od/nutrition/a/fibercounts.htm
Counting carbohydrates - includes list of foods with carbohydrates
http://findarticles.com/p/articles/mi_m0675/is_n1_v10/ai_11729520/
Carb Counting- Healthy Eating - American Diabetes Association
http://www.diabetes.org/for-parents-and-kids/diabetes-care/carb-count.jsp
Children with DIABETES - Readers' Favorite Recipes
http://www.childrenwithdiabetes.com/recipes/
Diabetic Menu Planning
http://www.your-diabetes.com/diabetic-menu.html
Complete Diabetic Menu
http://www.diabitieslife.com/diabetes/diabetes-diet/food/complete-diabetic-menu.htm
State Specific Assistance:
State Health Agencies(50 states)
http://www.healthguideusa.org/state_health_departments.htm
Health Coverage for All Children Campaign
AAP Children's Health Topics: CHILDREN WITH SPECIAL HEALTH CARE NEEDS
http://www.aap.org/healthtopics/specialneeds.cfm
Special Feeding Needs:
So Your Baby / Child Needs To Be Tube Fed
http://infantrefluxdisease.com/infant_acid_reflux/tube-feeding.php
How to Care for a G-Tube
http://www.ehow.com/how_2053455_care-gtube.html
Percutaneous Gastrostomy Tube Care, Cincinnati Children's Hospital Medical Center
http://www.cincinnatichildrens.org/health/info/abdomen/home/perculator.htm
Medic Alert Symbol : In My Jammies
http://www.cafepress.com/inmyjammies/3105766
MedicAlert® Watch
http://www.medicalert.org/Watch/
Medical Alert Bracelets
http://911medalert.com/?gclid=CI-zqfy-0poCFRJexwodkQMTFg
Sharps Compliance
Copyright 2011 Children Against Hyperinsulinism. All rights reserved.
All Board members donate their time to the Organization.
Congenitalhikids.org
4500 E. palm Valley Blvd ste108/ box# 21
Round Rock , TX 78665
contact