Children with Congenital Hyperinsulinism who undergo a pancreatectomy are not only at risk for continued hypoglycemic episodes, but also face the risk of becoming diabetic as well. 

 

The color SILVER stands for children who have physical and/or learning disabilities.

Many children with Congenital Hyperinsulinism require long term tube feeds and use of intravenous fluids and medication designed to prevent recurrent hypoglycemia. The mechanism of this disease prevents the body from producing ketones, placing the child with Hyperinsulinism at greater risk of brain damage. A child with this disease must take in food frequently, though they are often subject to random episodes of hypoglycemia. This disease consumes hours each day and night and often requires extended and frequent hospital stays.

The colors BABY BLUE and PINK stands for infant boys and girls.

One of our goals is to establish newborn protocol for blood sugar testing in every state.  Currently each state varies in their standards (if they have any) with the majority of blood sugar testing being administered on babies born to mothers with Gestational Diabetes only.

 

Thank you!

Thank you to all the health care professionals and researchers working hard to find a cure and to treat this disease. 

 

To the Families of HI:

We also dedicate our ribbons to the children, adults, and families struggling with the effect of all the different types of Congenital Hyperinsulinism.

There are so many unknown variables and mutations with this condition, making further research and support extremely important.  The ribbons are meant to assist in gaining knowledge and the means through which the children and adults with Congenital Hyperinsulinism can be properly identified and treated.

 

Ribbon design was based on study information on the outcome of children with HI. Below is a link to the study.

http://www.ncbi.nlm.nih.gov/pubmed/12824865